Jack Marshall is 12 years old. His youngest sister Ruby who is 18 months old has been diagnosed with Pearsons Syndrome which is under the umbrella of Mitochondrial disease for which the Lily Foundation is all about. Ruby has mass deletions in her mitochondrial DNA, although a genetic issue it was just a random mutation and she is extremely unlucky. There are around 20-30 living children with this syndrome in the world right now, that's how rare and unknown it is. There is no cure for this and Ruby will deteriorate over the next few years.
Fundraising pageThe Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting. Please stand with us and fight Mitochondrial Disease and fight for hope
Charity website21 hours and 57 minutes
The National Three Peaks Challenge takes in the highest mountains in Scotland, England and Wales, often in 24 hours.